rehabРеабилитологияJournal of Medical Rehabilitation2949-58732949-5881IRBIS LLC10.17749/2949-5873/rehabil.2024.12rehab-10Research ArticleОБЗОРНЫЕ СТАТЬИREVIEW ARTICLESРодительский стресс при детской эпилепсииParental stress in childhood epilepsyБыковщенкоГ. К.BykovshchenkoG. K.

Быковщенко Георгий Константинович

ул. Трубецкая, д. 8/2, Москва 119048

Georgiy K. Bykovshchenko

8/2 Trubetskaya Str., Moscow 119048

gbk3004@yandex.ruФедеральное государственное автономное образовательное учреждение высшего образования «Первый Московский государственный медицинский университет им. И.М. Сеченова» Министерства здравоохранения Российской Федерации (Сеченовский Университет)РоссияSechenov UniversityRussian Federation20240609202421149157Copyright © Быковщенко Г.К., 20242024Быковщенко Г.К.Bykovshchenko G.K.Данная работа распространяется под лицензией Creative Commons Attribution 4.0.This work is licensed under a Creative Commons Attribution 4.0 License.https://www.rehabilitology.com/jour/article/view/10Актуальность

Актуальность. Эпилепсия − распространенное и стойкое неврологическое заболевание, которым чаще страдают дети.

Помимо очевидных физических и эмоциональных последствий для ребенка эпилепсия, как и другие хронические патологии, может серьезно повлиять на благополучие членов семьи. Чтобы всесторонне решить проблему родительского стресса, крайне важно иметь глубокое понимание различных факторов, связанных с ним.

Цель

Цель: определить влияние родительского стресса на течение эпилепсии у детей.

Материал и методы

Материал и методы. Поиск исследований, посвященных изучению стресса у родителей детей с эпилепсией, в научных базах данных PubMed/MEDLINE, Google Scholar, ScienceDirect и библиотеке eLibrary позволил выявить 2670 публикаций. После отбора в обзор включено 39 статей.

Результаты

Результаты. Для определения уровня родительского стресса существует ряд анкет: PSI, PSI-SF, PIP, IPES. Представленные опросники показали свою точность и были валидированы в исследованиях по изучению данной проблемы у родителей детей с хроническими заболеваниями, включая эпилепсию. Показана взаимосвязь между уровнем родительского стресса и прогнозом течения эпилепсии, психологическим состоянием детей, качеством жизни родителей. Обоснована важность дополнительной психологической поддержки родителей детей с эпилепсией. Представлена целесообразность использования биомаркеров повреждения головного мозга у детей в качестве дополнительного инструмента оценки выраженности родительского стресса.

Заключение

Заключение. Дети, страдающие хроническими заболеваниями, такими как эпилепсия, и их семьи часто сталкиваются с целым рядом взаимосвязанных проблем. К ним относятся родительский стресс, трудности с соблюдением плана лечения и адаптацией в школе, дискриминация в обществе. Несмотря на актуальность этого вопроса, крупномасштабных продолжительных исследований, посвященных изучению стресса у родителей детей с эпилепсией, не проводилось, поэтому связь между эпилепсией и родительским стрессом до конца не изучена. Необходим совместный подход, при котором и ребенок, и родители берут на себя ответственность за лечение заболевания.

Background

Background. Epilepsy is a common and persistent neurological disorder that typically affects children. In addition to the obvious physical and emotional outcomes for a child, epilepsy, like other chronic conditions, can have a profound impact on the well-being of family members. In order to comprehensively address and manage parental stress, it is essential to have a thorough understanding of the various factors involved.

Objective

Objective: to determine the influence of parental stress on the course of epilepsy in children.

Material and methods

Material and methods. A search for publications devoted to the study of parental stress in pediatric epilepsy in scientific databases PubMed/MEDLINE, Google Scholar, ScienceDirect, eLibrary identified 2670 articles. After the selection, 39 publications were included in the review.

Results

Results. There are a number of questionnaires that allow determining the level of parental stress: PSI, PSI-SF, PIP, IPES. They have shown their accuracy and have been validated in studies devoted to parental stress in parents of children with chronic diseases, including epilepsy. The relationship between the level of parental stress and the prognosis of epilepsy course, psychological state of children and the quality of life of parents was shown. The need for additional psychological support for parents of children with epilepsy was indicated. The feasibility of using biomarkers of brain damage in children as an additional tool for assessing the severity of parental stress was presented.

Conclusion

Conclusion. Children with chronic conditions, such as epilepsy, and their families often face a number of interrelated problems. These include parental stress, difficulties in following treatment plans and adjusting to school, social discrimination. Despite the relevance of this issue, there are no large-scale, longitudinal studies examining stress in parents of children with epilepsy, so the relationship between epilepsy and parental stress is not fully understood. A collaborative approach is necessary, in which both the child and parents take responsibility for the treatment of the disease.

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The authors declare that there are no conflicts of interest present.